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Posts Tagged ‘Rheumatoid Disease’

Wonderful blogpost by Ashley Boynes-Shuck. I recommend it highly!

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I support RPF {Rheumatoid Patient Foundation} because:

1) There is no other charity just for Rheumatoid Disease {formerly known as Rheumatoid Arthritis}.

2) On a personal basis, as I have RD, and follow rawarrior.com, I am very much aware of the gaps in the support available for PRD. My husband, who has cardiac and lung disease, works hard to help me with my activities of daily living (ADLs). We cannot afford homemaking or personal services and don’t qualify for govt-supplied services. Only through increased public awareness will these kinds of services ever become more available. We don’t qualify for drug assistance, so I cannot get on any of the biologicals. So far, I haven’t qualified for any clinical trials, so I am “stuck” with “older” medications which are inadequate to my disease state.

3) Although we are personally blessed that nearly all of our family members and many of our friends who are both understanding and supportive, there are many people who do not have these blessings. Only through public awareness will these gaps begin to be closed.

4) Many rheumatologists, especially in the USA, don’t seem to have a clue (!) as to the pain and disability we PRD experience. Only through professional education will we bring them to the level of understanding found in Europe and other areas of the globe.

5) Drug companies don’t seem to realize the suffering experienced by over 2/3 of PRD. Helping them see the need for additional patient support and reduced cost of drugs for RD is absolutely necessary!

6) The RPF addresses these needs and more through public awareness, professional awareness and education, and PRD support.

7) The RPF can ONLY address these needs if we provide the money to support RPF!

So, my husband and I support the RPF!

RPF is a 501(c)3 non-profit that can receive tax-deductible end-of-year donations. Often, people have been conditioned to only think of the Arthritis Foundation in this light, even if they are members or supporters of RPF!

Points to Ponder:

RPF is the only charity just for RA
RPF is a non-profit [501(c)3] organization by patients, for patients – Our vision is a world where no one suffers from rheumatoid disease: help our vision become a reality
RPF works with patients, doctors and industry to address patients’ needs and create pathways to better care
RPF is volunteer-run, and we rely on support from donors and members to help us achieve our goals
– Please help support patient-driven research – DONATE HERE
BECOME AN INDIVIDUAL MEMBER HERE ~~ OR A CORPORATE MEMBER HERE ~~ add your voice ~~ together, we can do more!

PS – you don’t have to be a person with rheumatoid disease (PWD) either to support or become a member of RPF!!

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