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Rheumatoid Arthritis Guy had a fabulous post back in June. Thought I’d give it a pingback!
http://www.rheumatoidarthritisguy.com/2011/06/you-know-you-have-rheumatoid-arthritis-when/
My additions:
. . . you define your entire week based on which day you take your methotrexate (MTX);
. . . you go into mourning when your “favorite” pen runs out of ink and you can’t get a refill until next week;
. . . you have an incredible collection of DVDs, recorded off cable TV, and you can’t get up the energy to look through them and decide what to watch;
. . . you are working from home and your clients always preface assignments with – “Are you up to reviewing this many records by {date 2 weeks in the future}” and you reply – “It will depend on what happens between now and then – weather, sudden flare, sudden malaise, brain fog, etc.” and they say – “Shall I mail the information, then?” What do they NOT know about RA (and fibro) despite my attempts at education . . .
. . . Your extremely long-suffering husband finally has “had it” with the frustration of your sudden drops in energy level and snaps at you, resulting in your having mild hysterics. {But making up is so marvelous!}
Related articles
- Combination Therapy for Rheumatoid Arthritis (webmd.com)
- A Day Late: How Rheumatoid Arthritis Affects My Life – In Honor of World Arthritis Day (livinglifewithraandfms.wordpress.com)
I just upended a cup full of (not clean) water into the cupboard as I attempted to help clean up the kitchen despite the onset of that utter fatigue that swamps us sometimes. I thought the cup was clean and was turning it over to put it on the shelf. My wonderful husband took over without complaint, taking the other cups down and mopping out the cabinet and the countertop below it. However, there are times when I can see–and totally understand–how that’s so hard for him. It was only after I stumbled off that I remembered that this morning is my Enbrel morning and, in the excitement of having grandchildren here this morning, I forgot the injection.
Hope you did your Enbrel, even if it was several hours late! I missed my MTX Thursday and injected it Friday instead. Now I’ll feel totally yucky for the next 2 days. Hope your Enbrel doesn’t affect you this way!